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Diagnosis of Celiac Disease

Why does there seem to be such under diagnosis of Celiac Disease?
Why does the medical community continuously overlook it?

I have had chronic anaemia for almost all of my life, yet because I was a woman, it was almost accepted that this is “normal”. My constant stomach problems as a child called “spastic colon”, to an adult being called “irritable bowel syndrome”. Not that this isn’t a real condition or even that I don’t still have some features of it, but it was in my case almost a dismissive diagnosis, “we don’t know what else it is, it must be IBS”. Then most significantly the thing that affected me the most was my fibromyalgia causing constant fatigue and muscle and joint pain. Again this tended to be a basket case diagnosis. The doctors thought there must be an underlying condition, but never knew what it was.

I went from specialist to specialist, none of them quite able to pinpoint what was wrong with me. I was even originally mistakenly diagnosed as having Multiple Sclerosis (MS). Its crazy now that I have a diagnosis to look back and be able to join the dots and see how all my many varied symptoms can all come from the same point.

The discovery of my Celiac disease came by pure fluke. My blood tests continually showed very low iron, despite iron transfusions and very low thyroid, despite replacement thyroid medication. My GP was concerned and decided to send me to a Haematologist who decided we needed to find the source of this and not just keep trying to treat the symptoms (yay finally someone who thought like me!). She did a whole lot of blood tests and it took a few weeks, but the anti bodies for gluten came back positive. I had high levels of antibodies. IGA and IGG and I was also positive for anti-endomysial antibodies.

The next step in the diagnostic procedure was that I had to undergo a gastroscopy and a biopsy was taken of my small intestine. All of these tests then confirmed that I did indeed have Celiac Disease.

Since coming off gluten, its as if by some miracle, all my symptoms of all my other ‘illnesses’ have mysteriously disappeared. I no longer have fibromyalgia, or IBS or joint pain or fatigue and all my blood test results are normal. It is a simple thing to diagnose, yet so overlooked by the medical community. We need educate people about Celiac disease and encourage our doctors to test for it!

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